On July 15, 2009 we discovered Caden was born with a rare heart defect known as Left Ventricle Non Compaction Cardiomyopathy. We were told that Caden's heart was functioning at 21% (normal would be 42% to 48%); worse case scenario: if his heart got down to 10% he would be put on a transplant list and there would always be the chance his body would reject it; best case scenario: his heart would improve over time with medication and he would be able to live a functional and well life. We felt so overwhelmed and feared how in the world could we ever raise a child with a rare heart defect and keep him safe and in the best condtion possible.
In May 2010; at his heart appt we found out that his heart had improved and was functioning at nearly 45% which was in the high function of normal range; and the doctors decided not to increase the medication to keep up with his weight but rather let it take a year and see how the heart and his body reacted. As the last year has passed it keeps you on edge as the heart appt rolls around because many times fear begins to creep in and and we fear the worst; but still pray and hope for the best.
On May 25, 2011 . ..that day rolled around and we headed for ACH to meet with Caden's cardiologist Dr. Paul Sieb. Caden's heart was still functioning at a high normal range and all the test they ran came back normal. We had a wonderful visit with Dr. Sieb and will go back in another year. God is still in the business of working miracles because without God the improvment for Caden's heart wouldn;t have happened. There have been many prayers that have gone up and are still going up interceding on behalf of Caden to the throne room of God.
Caden has been doing good. His feeds are going well; and he seems to be gaining weight and growing which is another blessing from above. Caden seizures are not as often; but seem to be harder when he does have them. The seizures seem to rare their selves about every couple or few days. Please pray God works a miracle and they will be under control as well.
I Corinthians 2:16 "For who has known the mind of the Lord that he may instruct him?" "But we have the mind of Christ."
I pray we and a
In May 2010; at his heart appt we found out that his heart had improved and was functioning at nearly 45% which was in the high function of normal range; and the doctors decided not to increase the medication to keep up with his weight but rather let it take a year and see how the heart and his body reacted. As the last year has passed it keeps you on edge as the heart appt rolls around because many times fear begins to creep in and and we fear the worst; but still pray and hope for the best.
On May 25, 2011 . ..that day rolled around and we headed for ACH to meet with Caden's cardiologist Dr. Paul Sieb. Caden's heart was still functioning at a high normal range and all the test they ran came back normal. We had a wonderful visit with Dr. Sieb and will go back in another year. God is still in the business of working miracles because without God the improvment for Caden's heart wouldn;t have happened. There have been many prayers that have gone up and are still going up interceding on behalf of Caden to the throne room of God.
Caden has been doing good. His feeds are going well; and he seems to be gaining weight and growing which is another blessing from above. Caden seizures are not as often; but seem to be harder when he does have them. The seizures seem to rare their selves about every couple or few days. Please pray God works a miracle and they will be under control as well.
I Corinthians 2:16 "For who has known the mind of the Lord that he may instruct him?" "But we have the mind of Christ."
I pray we and a