Good Morning!
As a parent of a child of special needs better known as 1p36 Deletion Syndrome, I often hear people say or comment "Oh, bless your hearts, I am so sorry" or "I just don't know how you do it" or even "poor little boy" while shaking their heads. If you have a child of special needs you know exactly what I mean and where i am coming from, but as you know those people are the ones who need to be have their lives blessed and are poor.
Our lives are blessed more than they will ever know, because we are apart of something special, that allows us to understand the true value of life and how precious is that gift from God. We have learned to expect the worst, but find the best. We are able to see the small things, rather than taking them for granted.
How do we do it? When given the chance and opportunity I answer this question the same each time. We do it, just like you do. If your child is sick, don't you give your child their medication and take them to the doctor? Do you not sit up in the middle of the night checking on them no matter how tired you maybe? While you do it on a few days of the year, we do it many days throughout the year. Life is really no different from a life of a parent of a special needs child to that of a parent of a child without special needs, because when you truly love and care for your child you want to make sure they are taken care of and have the best. Yes, its true ours may take up a little more time, but special needs parents have learned more in a few years than many parents will learn in a lifetime The child's siblings are learning from a firsthand experience and learning to accept all people no matter, because their love for their sibling has taught them the meaning of love, acceptance, kindness, and gentleness.
Our son, Caden is not a "poor little boy" he is rich in love and teaches those around him what true strength and that there is no fight worth giving up in. Many special needs children battle and overcome more in a few years, than some will face in a lifetime They teach without speaking, their love is unwritten, their wisdom beyond their years, their strength stronger than lifting weights.
Have a blessed day, and remember to thank God and have your life and eyes open to the blessings around you and always be ready to learn from unspoken words.
As a parent of a child of special needs better known as 1p36 Deletion Syndrome, I often hear people say or comment "Oh, bless your hearts, I am so sorry" or "I just don't know how you do it" or even "poor little boy" while shaking their heads. If you have a child of special needs you know exactly what I mean and where i am coming from, but as you know those people are the ones who need to be have their lives blessed and are poor.
Our lives are blessed more than they will ever know, because we are apart of something special, that allows us to understand the true value of life and how precious is that gift from God. We have learned to expect the worst, but find the best. We are able to see the small things, rather than taking them for granted.
How do we do it? When given the chance and opportunity I answer this question the same each time. We do it, just like you do. If your child is sick, don't you give your child their medication and take them to the doctor? Do you not sit up in the middle of the night checking on them no matter how tired you maybe? While you do it on a few days of the year, we do it many days throughout the year. Life is really no different from a life of a parent of a special needs child to that of a parent of a child without special needs, because when you truly love and care for your child you want to make sure they are taken care of and have the best. Yes, its true ours may take up a little more time, but special needs parents have learned more in a few years than many parents will learn in a lifetime The child's siblings are learning from a firsthand experience and learning to accept all people no matter, because their love for their sibling has taught them the meaning of love, acceptance, kindness, and gentleness.
Our son, Caden is not a "poor little boy" he is rich in love and teaches those around him what true strength and that there is no fight worth giving up in. Many special needs children battle and overcome more in a few years, than some will face in a lifetime They teach without speaking, their love is unwritten, their wisdom beyond their years, their strength stronger than lifting weights.
Have a blessed day, and remember to thank God and have your life and eyes open to the blessings around you and always be ready to learn from unspoken words.